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Renaud Dupont & Clarisse Lewalle - 50 years! - Velodyssee 750km in seven days
2 735€ raised
Goal 2800 €
Hello Network,
This one is a more personal one.
10 years ago, when I turned 40, I organised a huge party with lots of friends. I felt it was the right time to do it and it was great fun. For my 50th birthday, I have the feeling I must do something different. It's true that turning 50 isn't as much fun, but it's mainly the state of the world around us that's making me want to do something different. I guess that if we start to do more things which are less self-centered and more in favor of those who need help, we might still have a positive impact in this world.
Those who know me a little bit, know that biking is an important part of my life. In about 10 days, I will ride my bike, with my wife clarisse lewalle, doing a significant part of the www.lavelodyssee.com (roughly 750k in a week). I would like to take this opportunity to raise a little bit of money for the 101 Genomes Foundation, created by my excellent colleague Romain Alderweireldt and his wife Ludivine Verboogen.
Romain and Ludivine have created the Fondation 101 Génomes to help children who, like their little boy, suffer from a rare disease. I invite you to pay attention to their website https://www.f101g.org/en/. It is self-explanatory. What they have been able to do since 2017 is just amazing and they need our support. Donations can be made here https://lnkd.in/eVUMtQmx
Donating a little bit of money would make my (birth)day.
Thank you.
Renaud
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Pour nos 50 ans respectifs, mon mari Renaud Dupont et moi allons (beaucoup) pédaler en parcourant une partie de la Velodyssee www.lavelodyssee.com (750km en 1 semaine). Vive le vélo.
Dit is voor ons de gelegenheid om geld in te zamelen voor de 101 Genomes Foundation van Romain Alderweireldt en zijn echtgenote, Ludivine Verboogen (Romain is een collega van Renaud).
Romain and Ludivine hebben deze stichting opgericht om kinderen te helpen die, zoals hun zoontje, een zeldzame ziekte hebben.
Clarisse
— Renaud Dupont & Clarisse Lewalle - 50 years! - Velodyssee 750km in seven days
The Fondation 101 Génomes (F101G) is a patient-led initiative that aims to boost groundbreaking research in the field of rare diseases. F101G is hosted by the Fondation Roi Baudoin.
Our goal is to advance the understanding of the human genome to better treat rare diseases affecting children. We want to accelerate discoveries into new diagnostics tools and more efficient treatments.
To this aim, F101G is set to create a unique bioinformatic database that will unleash the full potential of genomics and artificial intelligence.
Our crowdfunding campaign “Impatient” wants to accelerate funding for research. We are “Impatient” because, when it comes to saving lives and improving the quality of life of people with a rare disease, there is no time to waste.
Gifts worth over 40 EUR are fiscally deductible.
Your money will help to support F101G’s pilot project, focused on Marfan Syndrome. Marfan Syndrome is a rare genetic connective tissue disorder affecting 1 in 5000 people. It’s a serious condition, which can be potentially life-threatening without an early diagnosis and medical treatment.
The pilot project aims to create a bioinformatic database crossing genotypic (Whole Genome Sequencing) data and detailed phenotypic (clinical) data from a cohort of patients holding the exact same mutation in FBN-1 gene. The ultimate aim is to understand the extreme variability in the symptoms of Marfan patients.
World-class medical scientists will have open access to this database. They will be able to launch algorithms designed to understand why some people display severe symptoms while others are only mildly affected by the mutation causing Marfan Syndrome. This discovery will allow scientists to develop accurate diagnostic tools and personalised treatments and cures for Marfan patients.
The project has galvinized support from the international scientific community. F101G’s scientific committee is formed by scientists from Antwerp University, UZ Gent, Erasme Hospital, Nijmegen, and Bichat Hospital.
Donations (32)
32 magic donors are supporting "Renaud Dupont & Clarisse Lewalle - 50 years! - Velodyssee 750km in seven days"
50 €
Maryline
— 5 months ago
100 €
Paul
— 5 months ago
100 €
Candice
— 5 months ago
150 €
Tom
— 5 months ago
Bravo pour Clarisse et Renaud, 2 x 50 ans = un siècle de bonheur!
40 €
Schapira
— 5 months ago
100 €
Isabelle
— 5 months ago
50 €
Valerie
— 5 months ago
50 €
Stephanie
— 5 months ago
100 €
Les Rougon
— 5 months ago
Des bises ! 😘
50 €
Genevieve
— 5 months ago
Félicitations les champions! J’comprends pas pourquoi vous ne m’avez pas demandé de vous accompagner un bout de chemin! Moi qui pedale si bien 🤪🤪🤪! 😘😘😘
40 €
Clarisse
— 5 months ago
50 €
Olivier
— 5 months ago
25 €
Renaud
— 5 months ago
10 €
Jean-Marc
— 5 months ago
Belle Vélodyssée!
40 €
Aline
— 5 months ago
🚲❤️🚲
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